I'm tired of using words to describe what it's like living with Arnold Chiari Malformation Type I. So instead I'm using pictures.
Catching Elephant is a theme by Andy Taylor
Life In Boxes
"Control over her emotions was no longer in her hands. Indeed, some emotions she was afraid she’d never feel again."
…but I didn’t know how hard it would be to come back.
It’s hard when you constantly feel like time is running out. All the yes’s are becoming no’s. All the dreams slipping inexorably from your grasp.
One by one, she watched her dreams burn.
The disease robbed her of her physical strength and tainted her memories.
"There were days when she didn’t recognize herself. It was as if the disease was taking over her entire identity."
She couldn’t say it was tearing her apart. All she could do was reach out her hand.
It’s been a year to the day since my diagnosis. This is my story.